Flu’s Blog
Nobody like to be sick

relief? He has now just since school started has been hospitalized for coaxsackie disease (5days) then gets a sinus infection on antibiotics, double ear infection, ON antibiotics, the stomach flu…….NOW EVEN THOUGH HE HAS HAD 3 DIFFERENT ANTIBIOTICS HE HAS A 102.2 fever…………………AHHHHHHHHHHHHHHHHHHHHHHHH is there any relief? Mind you a little back ground info on him………3 months in nicu, placental abruption, he has asthma, epilepsy, reflux, BAV, hearing problems (7 sets of tubes and after 3 months the 7th set is confirmed out as of FRI.) IGA deficiency, and a bunch of weird allergies. Out of all the doctors we see immunology, pulmonolgy, allergy, ENT, Gastro, Nuero, OT. everyone argues on what it is causing all the issues. Ent said it was food allergy had to be dairy and wheat. We pulled him off of dairy 6 weeks .no change. We pulled him off of wheat 6 weeks nothing (but a child who lost 5 lbs) Ent ran blood test stated first test was a false negative. Second test was positive. So gastro did an intestinal biopsy for Celiac disease, completely negative no allergy shown what so ever, checked the stomach lining no issue with dairy, just severe reflux which the child has had since day one………………I am so frustrated.NONE of the doctors agree on issue or treatment except IGA, SURGERIES MEDICINE ETC ETC…. the immunologist wants to do 24/7 round the clock antibiotics. Well here is where I stand on that. First off he has an allergy to penicillin as well as sulfa all subclasses antibiotics. So if the ent puts him on round the clock therapy would he not build up immunity to the antibiotic he is on (immunologist says no but I don’t see how it could be avoided) As well his allergies what if he gets sick and needs antibiotics and they don’t work because he is on one 24/7 due to allergies to two subclasses? immunology says we would have to cross that bridge then! OK? I don’t want to it scares me. Isn’t it doctors who tell us too many times patients want antibiotics and they don’t prescribe often because of immunity tolerance over use blah blah blah ? I am going nuts. I have a son who doesn’t no why he always feels bad, why he cant go to school with a fever (since it is so common for him) why he see’ s so many docs. All the needles. All the hospitals. I want to help him so bad he wants a normal childhood. No matter how hard we try to make it just like everyone else he realizes he is different. He doesn’t like it. I can not count how many nights I have cried over not being able to help him. Any advice would be greatly appreciated any suggestions……..HOME SCHOOLING ISN’T AN OPTION DELAYS AND L?D wont allow it.
Appreciate the advice in regards to moving but we are already in Florida now and it seems he has been sicker. How much warmer can you get? lol

By: imnoangel_81